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Week 23: Still suffering

Well, this week has kind of sucked. I still can’t get back to the
status I was in before adding the last worms. (Reinoculants; beware.)
I’m thinking of repeating my blood tests, since I don’t trust their
results, but I have to admit when I took them, I was having liquid
diarrhea (a reaction to the final cohort), so the results were a
shocker. Perhaps the labs got mixed up? I suppose I should retest
before CCFA publishes my interview in July as to how in remission I am…

POSITIVES:

*night sweats a distant memory
*still eating toast
*slept through all nights but one, and that was due to Memorial day
gluttony (I wanted to be American and eat most of a bag of BBQ potato
chips; Bad idea.)
*my arm muscles are growing and I’m starting to look like an athlete
(or at least a big, strong woman :)
*for some reason, I can eat lots of cherries; but not lettuce
*chocolote dipped cherries
*weekly 1/2 loafs of sourdough bread followed by cherries are fine!!!
*I can drink black tea until I fall asleep at night
*I can nap within minutes (I have almost never been able to nap,
especially in my sickest, when I needed it the most. Now I just put
my head on the pillow, put on a Harry Potter tape, and I’m dreaming)
*no pain, even with large amounts of gas (damn those chips)

Is my entire success based around eating? I have to admit, after a
dinner of chocolate dipped cherries and sourdough toast, I felt as if
I could leave this world right then and be satisfied.

NEGATIVES:

*loose stools, diarrhea, urgency, mucus…You’d think I have Crohn’s
disease or something
*tired, oh so tired (But my iron arrived in the mail. Hurray! First
shot tomorrow…)
*still have acne (will this ever go away? I’m 36 damn it. When you
have wrinkles and greying hair, you’re supposed to at least have the
gift of clear skin)
*still being attacked by the Sleep Monster. 2 hour naps and I fall
asleep at 9; up at 5, but I need as much sleep as my 7 year old
*depressed (I am realizing I need constant stimulation. I need some
intellectual persuit besides wondering about the worm life cycle)
*might go back on SCD temporarily. I may need an antidepressant
though to do it.

So I wait. The last cohort caused a very negative reaction; liquid D,
nauseau for days…I haven’t had a solid stool since. So I’m hoping
my ongoing negativity is due to that; they should reach maturity soon.
We’ll see if that changes anything. Or perhaps this is as good as
I’m going to get. :( Or perhaps I need to do more to reach
perfection (diet, probiotics, etc.)

I soldier on. Cherries await…

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