Wow, I’m at the 7 month mark! 10 weeks into my regression hopefully
caused by the last cohort. I’m giving the last dose one more month
before I conclude that they are/are not the reason for worse symptoms.
(I was better in month 4 than months 5 and 6 so far…)
POSITIVES:
*Just weighed myself on Friday. Lost 2 pounds; 152 Still my healthy
weight, so I’m keeping it on despite the diarrhea
*Prepared for an enormously elaborate party and did an exceptional
amount of work with my husband gone and record breaking temperatures
(an example of one day: moved 7 haybales, built a 7 foot plywood
table, washed 56 glass plates and cups by hand, cleaned the kitchen,
livingroom, took care of my girls, made biscotti, and weeded.)
Granted, I’ve been exhausted for a week following, but it was fun.
*my skin looks clearer
*been hit on by 2 men in their mid 20’s 
*food eaten this week: Thai food, Indian (twice), double espressos
(granted, I got a bit of a stomach ache), chocolate, Bourbon, wine,
lots of cherries, lettuce, bread, and the real marker of success: I
forgot the rest
*Relandscaping my entire front yard doesn’t seem that daunting
*my GP finally found the mother vein, and my iron shots go in the
first or second try, rather than the sixth painful poking; I can’t say
I’m any less tired, but I think I’m blacking out less
*2 almost solid bowel movements mixed in with the rest of the mess
*haven’t had night sweats in months
*little to no pain
NEGATIVES:
*getting up at night to go to the bathroom, 2 accidents
*mucus, diarrhea, gas, loose stools (will this ever change?)
*still very tired; napping daily, going to bed by 9
*very scared that I ruined my good health with the last cohort, and
they displaced the first amount, causing me to have less worms than
before, and thus, not enough to truly modulate the immune system and I
am forever stuck in a better, but not-better-enough-to-do-the-things I
truly-want-in-my-life place
*mild arthritis; I can walk, play music (for a time), garden, but I
get pains and twinges in my ankles, hips, and odd places like my ring
finger. More scared than suffering.
*obviously sensitive to many foods still
*just fed up with the worry and diarrhea and want to end this whole
journey now (with success, not suicide)
But, I wait. Another few weeks and I’ll know if things will get
better around this last cohort, or if this is as good as it gets. I
just took another CRP, SED test, so that will determine a lot. If
it’s as good as the 4.5 month one, i.e. no inflammation, then I will
conclude that the worms have probably done all they can, and it’s up
to me to start probiotics/diet to tweak my symptoms. If it’s
elevated, then I guess I’ll have to decide what to do; either wait, or
add something else. I guess I’m also thinking that there’s a
possibility that 27 larvae are too much for my sensitivity, and I
really only needed 15. But I won’t conclude that for months. And
then I guess I can decide if I actually need more; if that temporary
good feeling around month 4 was due to the bounce effect of adding
worms, and now that I’ve stopped, this is as good as I get. Oh, the
choices!
Irregardless, I wait…I’m tring to delight in my garden, my girls,
summertime. I’ve cancelled my summer travel plans because I don’t
feel well enough, so that’s a big disapointment, but I also live in a
vacation destination, so the big lesson in my life at the moment is to
be happy with what I have. If this is all I get in the ways of
benefit from hookworms, I am still WAY better off than last Fall and
perhaps with monumental effort can get back to where I was several
years ago. If my inflammation is still reduced, at least the
hookworms have been far more effective than Humira, and should
continue to be so. And, I don’t have to worry about leukemia!
It’s been a very exciting journey, I just wish there hadn’t been so
many unknowns and blind reasoning. I envy those that will try this in
a year, when there are a number of us who have tested and proven what
the best dose and such is. So I’m happy, but want more.
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