Comments on: CBS NEWS INTERVIEW!!

By: admin

admin — Mon, 17 Aug 2009 14:20:06 +0000

This is where I was at before trying hookworms. I have scar tissue in my ilium, so it’s narrowed normally – when it’s inflamed, I have painful partial blockages. Now it’s back to being just a little scarred – although I’ve eaten raisins and salad in the last few months, and it’s been fine, so it’s a lot better from the hookworms.

I would say, be careful during the first inflammatory part. Maybe try a modest dose of hookworms rather than a larger one. (10 instead of 25?) It should work to reduce your inflammation, but might make things worse temporarily. It seems to take about 4 months to get better; it’s faster with redosing. It only took me 1 month for my inflammation no normalize. But I suffered the first time around (though surprisingly, the ileal area was better starting week 3, but I had other inflammation instead; edema and arthritis cocurrently.)

By: Crohn's Guy

Crohn's Guy — Wed, 03 Jun 2009 17:36:37 +0000

Hi,

Do you know of any patients who did well with the hookworms even with a stricture? I haven’t ever had any obstructions but my ileum’s pretty inflamed. I have a lot of bloating mainly. I could be just one major flare-up away from surgery so I’m really desparate.

By: admin

admin — Thu, 28 May 2009 01:05:19 +0000

Please remember my story is very unusual; most people get infected once, suffer a transient reaction (I was their most reactive patient to the least amount of worms) and don’t reinfect until much later down the road. The CD patients seem to be doing well generally, UC patients not so much. Good luck with your journey!

By: beck

beck — Thu, 28 May 2009 00:45:45 +0000

I just found your website today. Thanks so much for posting this long journey. I’ve got a relatively new (1 year) Crohn’s diagnosis, and am still looking for that magic equilibrium. hearing other stories helps, and getting the information out there on the hookworms is great.