The hookworms are helping enormously, but it’s not enough. I still have a lot of anal mucus, urgency, and “wet farts” that I wish would go away. I just hit my heighest weight; 162 (if the scale was accurate.) I started this whole hookworm experiment at 137 pounds, so this is considerable.
I’m going to do an egg count this week. Assuming it is the roughly the same as last time, I will hit 6 months from my last dose at the end of March. It may be that I infect every 6 months until I have enough worms to keep me well. I wonder if the infection itself is part of the solution? How many people have lasted beyond a year with relief? Is the number of worms critical? Do you reach a point that a certain number of worms = efficacy, then more becomes harmful?
Assuming I can get trichuris trichura, will that help? Since I have mostly colonic Crohn’s, would the whipworms be more efficacious to my rectal symptoms? Would the combination of hookworms and whipworms be more effective than hookworms or whipworms alone? How many whipworms then to add? What would be the side effect profile if one were infected with hookworms for 2 years already?
Too many unknowns. Too much to play with. The research is slow, and we are experimenting far outside of their perameters anyway. The celiac trial infected with 10 worms, then 5 a few months later. Who chose that number? The MS trial in Nottingham will infect with 25 worms at once. And no one is using trichuras trichura in research at all. The TSO you drink every 2 weeks.
Oh, what to do. I guess I’m lucky I have the hookworms at all to play with, assuming they’re still inside me, which I’m sure they are because of my symptoms. Just had a solid bowel movement, with no pain, after sleeping through the night (though I am having to wear panty liners now to catch the drip.)
I am just so sick of this experiment, I want to be fully well. But I’m working on being thankful for what I’ve got. The scientific spirit lives on, and I must keep experimenting on myself until I get as close to total wellness as I am able.
I still remember perfect health. I’ve got the body of an athlete, if only it is given a chance to right years of wrong. I may never achieve that, but I’ll be damned if I give up trying.