It is now 8 months since my last infection with 10 hookworm larvae, and I am steadily going downhill.Â Now pain is a constant, I saw blood yesterday for the first time, I’m going to the bathroom a minimum of 5 X a day, mostly loose or diarrhea, and I’m nauseous on and off, have very little appetite, and have now lost 10 pounds.Â Can I just say I hate this disease?
I did another egg count, and had plenty of eggs, in fact, the same that I’ve had since about 6 weeks from the last dose, so my regression is not due to a drop in egg production, or worms dying.Â Â Perhaps some male worms died, but the females are laying as strong as ever, so I don’t know what the hell is going on, except the theory that Crohn’s needs more frequent stimulation, and that the infection itself, or the new worms are part of the necessary immune stimulus.
I am bolstered by the eggs in my stool, however.Â Whatever it means.
I know the worms help, and I’m hoping another dose of 10 or so will get me back to a good place for a while.
When I first started this blog, my intention was to log my journey with hookworms, and I apologize for how up and down the whole thing has been, but that’s the way it’s gone.Â I haven’t ever reached remission in terms of symptoms, but I’ve reached pain free living (which is why it’s been so hard to have pain again for the last few months!), and certain things have gotten incredibly better, while other things have gotten worse.
Anyway, I still encourage everyone to try this, but the expectation that you will only have to infect once every 3-5 years is probably unrealistic.Â I’ve been in touch with at least 5 Crohn’s patients who maybe get to the one year mark, then have to reinfect.Â Human whipworms seem successful for the very few UC’ers who’ve responded on the yahoo forum, but the data is scant.Â The research is overwhelming, but the human trials haven’t yet proven anything, and nor have I.
I’m back on the Specific Carbohydrate Diet, with lots of probiotics and I’m just trying to hang in there until I find a safe new worm source.
I’m performing as a bassist in a band on Saturday, and it really sucks how sick I feel.Â A pad in my underwear to catch the drip, some Immodium, but God it sucks trying to live your life when you are ill, and though I have 22 years of experience, it never gets easier.