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	<title>Comments on: The Frustration of Worm Therapy</title>
	<atom:link href="http://waitingforthecure.com/I/2010/06/10/the-frustration-of-worm-therapy/feed/" rel="self" type="application/rss+xml" />
	<link>http://waitingforthecure.com/I/2010/06/10/the-frustration-of-worm-therapy/</link>
	<description>... a day in the life of Crohn's disease ...</description>
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		<title>By: Morph Muscle Builder</title>
		<link>http://waitingforthecure.com/I/2010/06/10/the-frustration-of-worm-therapy/comment-page-1/#comment-955</link>
		<dc:creator>Morph Muscle Builder</dc:creator>
		<pubDate>Mon, 05 Jul 2010 21:52:11 +0000</pubDate>
		<guid isPermaLink="false">http://waitingforthecure.com/I/?p=1027#comment-955</guid>
		<description>Just what is it about examining things through somebody else&#039;s eyes that presents such an incredible perspective? This and some other posts on your weblog here definitely give some food for thought. I actually ended up here via Bing when I was first doing a bit of online research for the course work that I&#039;ve got. Glad that I stayed around to read a bit and most definitely I&#039;ll not forget add your details to my bookmarks in order to read what you post down the road. Cheers!</description>
		<content:encoded><![CDATA[<p>Just what is it about examining things through somebody else&#8217;s eyes that presents such an incredible perspective? This and some other posts on your weblog here definitely give some food for thought. I actually ended up here via Bing when I was first doing a bit of online research for the course work that I&#8217;ve got. Glad that I stayed around to read a bit and most definitely I&#8217;ll not forget add your details to my bookmarks in order to read what you post down the road. Cheers!</p>
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	<item>
		<title>By: I</title>
		<link>http://waitingforthecure.com/I/2010/06/10/the-frustration-of-worm-therapy/comment-page-1/#comment-949</link>
		<dc:creator>I</dc:creator>
		<pubDate>Wed, 30 Jun 2010 15:23:22 +0000</pubDate>
		<guid isPermaLink="false">http://waitingforthecure.com/I/?p=1027#comment-949</guid>
		<description>I like wormtherapy in that they provide blood tests going back several years to show the host lacks HIV, AIDS, and that their samples aren&#039;t infected with strongyloides.  AIT has the most patients, over 200, so probably more experience, but they only have the one blood test from 2008, I believe.  I could be wrong; hopefully they have more now.  Wormtherapy uses Dr. Llamas who has some good additional info besides worms for various diseases.  I&#039;d call both parties and get a feel for them, then choose who makes you most comfortable.  The DIY movement is just beginning, but it&#039;s illegal to incubate in the US, and I would want blood tests going back a ways just to assure myself the hosts didn&#039;t have any serious viruses, even if the chances of coinfection are low to none.</description>
		<content:encoded><![CDATA[<p>I like wormtherapy in that they provide blood tests going back several years to show the host lacks HIV, AIDS, and that their samples aren&#8217;t infected with strongyloides.  AIT has the most patients, over 200, so probably more experience, but they only have the one blood test from 2008, I believe.  I could be wrong; hopefully they have more now.  Wormtherapy uses Dr. Llamas who has some good additional info besides worms for various diseases.  I&#8217;d call both parties and get a feel for them, then choose who makes you most comfortable.  The DIY movement is just beginning, but it&#8217;s illegal to incubate in the US, and I would want blood tests going back a ways just to assure myself the hosts didn&#8217;t have any serious viruses, even if the chances of coinfection are low to none.</p>
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		<title>By: Hunter Schofield</title>
		<link>http://waitingforthecure.com/I/2010/06/10/the-frustration-of-worm-therapy/comment-page-1/#comment-948</link>
		<dc:creator>Hunter Schofield</dc:creator>
		<pubDate>Wed, 30 Jun 2010 12:37:52 +0000</pubDate>
		<guid isPermaLink="false">http://waitingforthecure.com/I/?p=1027#comment-948</guid>
		<description>Thanks for you candor and commitment to promoting helmith access.  I have severe allergies and celiac disease which have evolved over the last several years into  debilitating, chronic sinusitis (and now early stage asthma). While I underwent &quot;successful&quot; sinus surgery last December, my sinusitis has returned with avengence since the onset of the spring and summer allergy seasons. I am ready for the hookworm therapy and willing to travel.  Is Worm Therapy in Mexico still my most reliable option for accessing safe treatment in your opinion? I did visit the do it yourself blog you recommended and the information seems great if you are fortunate enough to already be a host.  However, it seems that the movement is not far enough along for me to secure a reliable infection through these channels.  Your thoughts? Hunter</description>
		<content:encoded><![CDATA[<p>Thanks for you candor and commitment to promoting helmith access.  I have severe allergies and celiac disease which have evolved over the last several years into  debilitating, chronic sinusitis (and now early stage asthma). While I underwent &#8220;successful&#8221; sinus surgery last December, my sinusitis has returned with avengence since the onset of the spring and summer allergy seasons. I am ready for the hookworm therapy and willing to travel.  Is Worm Therapy in Mexico still my most reliable option for accessing safe treatment in your opinion? I did visit the do it yourself blog you recommended and the information seems great if you are fortunate enough to already be a host.  However, it seems that the movement is not far enough along for me to secure a reliable infection through these channels.  Your thoughts? Hunter</p>
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	<item>
		<title>By: I</title>
		<link>http://waitingforthecure.com/I/2010/06/10/the-frustration-of-worm-therapy/comment-page-1/#comment-938</link>
		<dc:creator>I</dc:creator>
		<pubDate>Sun, 13 Jun 2010 13:56:24 +0000</pubDate>
		<guid isPermaLink="false">http://waitingforthecure.com/I/?p=1027#comment-938</guid>
		<description>3) Too much conflict.

I&#039;m hoping to add more hookworms soon.  I respond to pretty low doses - I&#039;m thinking the frequency of infection is part of the immunomodulation, so the current plan is to try 15 and add every 5-6 months, or see how long I can go, redosing whenever things start to decline.

Since I&#039;m already having magnesium issues, I&#039;m a little hesitant to try larger numbers.</description>
		<content:encoded><![CDATA[<p>3) Too much conflict.</p>
<p>I&#8217;m hoping to add more hookworms soon.  I respond to pretty low doses &#8211; I&#8217;m thinking the frequency of infection is part of the immunomodulation, so the current plan is to try 15 and add every 5-6 months, or see how long I can go, redosing whenever things start to decline.</p>
<p>Since I&#8217;m already having magnesium issues, I&#8217;m a little hesitant to try larger numbers.</p>
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		<title>By: HS</title>
		<link>http://waitingforthecure.com/I/2010/06/10/the-frustration-of-worm-therapy/comment-page-1/#comment-937</link>
		<dc:creator>HS</dc:creator>
		<pubDate>Sun, 13 Jun 2010 13:19:47 +0000</pubDate>
		<guid isPermaLink="false">http://waitingforthecure.com/I/?p=1027#comment-937</guid>
		<description>3) why can&#039;t you get whipworm from AIT anymore?

20 hookworm is a pretty low #. I have 35 and I know some people, such as http://worms.michellerowley.com have 70. Why not try a higher number (closer to 50)</description>
		<content:encoded><![CDATA[<p>3) why can&#8217;t you get whipworm from AIT anymore?</p>
<p>20 hookworm is a pretty low #. I have 35 and I know some people, such as <a href="http://worms.michellerowley.com" rel="nofollow">http://worms.michellerowley.com</a> have 70. Why not try a higher number (closer to 50)</p>
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		<title>By: I</title>
		<link>http://waitingforthecure.com/I/2010/06/10/the-frustration-of-worm-therapy/comment-page-1/#comment-936</link>
		<dc:creator>I</dc:creator>
		<pubDate>Sun, 13 Jun 2010 12:52:58 +0000</pubDate>
		<guid isPermaLink="false">http://waitingforthecure.com/I/?p=1027#comment-936</guid>
		<description>1) I&#039;m pretty good at this diet, so I know I&#039;m not getting any additional gluten sources.  (Soy sauce isn&#039;t allowed anyway)

3) I can&#039;t get whipworms anymore from AIT, and I&#039;ve heard from at least one Crohn&#039;s patient whose nasal allergies came back after adding whipworms, only getting better after adding more hookworms again.  I might add them in the future, or possibly TSO if I become rich.

I currently have 20 hookworms (assuming every one took).
I take magnesium glycinate, did magnesium shots and infusions, and do transdermal mag.  To no avail.</description>
		<content:encoded><![CDATA[<p>1) I&#8217;m pretty good at this diet, so I know I&#8217;m not getting any additional gluten sources.  (Soy sauce isn&#8217;t allowed anyway)</p>
<p>3) I can&#8217;t get whipworms anymore from AIT, and I&#8217;ve heard from at least one Crohn&#8217;s patient whose nasal allergies came back after adding whipworms, only getting better after adding more hookworms again.  I might add them in the future, or possibly TSO if I become rich.</p>
<p>I currently have 20 hookworms (assuming every one took).<br />
I take magnesium glycinate, did magnesium shots and infusions, and do transdermal mag.  To no avail.</p>
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	<item>
		<title>By: HS</title>
		<link>http://waitingforthecure.com/I/2010/06/10/the-frustration-of-worm-therapy/comment-page-1/#comment-935</link>
		<dc:creator>HS</dc:creator>
		<pubDate>Sun, 13 Jun 2010 11:45:22 +0000</pubDate>
		<guid isPermaLink="false">http://waitingforthecure.com/I/?p=1027#comment-935</guid>
		<description>1) Just make sure you pay attention to all ingredients - there are many hidden sources of gluten. Who would&#039;ve thought that teriyaki sauce and soy sauce contain gluten?
3)Go with AIT&#039;s recommendation on their best guess with the number of whipworm. It can&#039;t really make it any worse.

How many hookworm do you currently have?
Do you take magnesium supplements?</description>
		<content:encoded><![CDATA[<p>1) Just make sure you pay attention to all ingredients &#8211; there are many hidden sources of gluten. Who would&#8217;ve thought that teriyaki sauce and soy sauce contain gluten?<br />
3)Go with AIT&#8217;s recommendation on their best guess with the number of whipworm. It can&#8217;t really make it any worse.</p>
<p>How many hookworm do you currently have?<br />
Do you take magnesium supplements?</p>
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		<title>By: I</title>
		<link>http://waitingforthecure.com/I/2010/06/10/the-frustration-of-worm-therapy/comment-page-1/#comment-934</link>
		<dc:creator>I</dc:creator>
		<pubDate>Sat, 12 Jun 2010 22:26:51 +0000</pubDate>
		<guid isPermaLink="false">http://waitingforthecure.com/I/?p=1027#comment-934</guid>
		<description>HS: 
1) Doing it.  A few days in on grain free, sugar free diet.  (SCD)
2)Wormfriends just had to close shop, so are no longer shipping worms. I&#039;d want a longer record, blood tests, and more client testimonials before I&#039;d consider them.
3) Don&#039;t know how many to use, how often, and I don&#039;t see a lot of data on other users yet.  Wish I could afford TSO, &#039;cause I could just add that.
4) Vit D is 55, so I&#039;m in a good range.

I think I just need more worms, and magnesium, somehow, and diet, more probiotics...maybe that will keep me in a better state.

Thanks for the advice!</description>
		<content:encoded><![CDATA[<p>HS:<br />
1) Doing it.  A few days in on grain free, sugar free diet.  (SCD)<br />
2)Wormfriends just had to close shop, so are no longer shipping worms. I&#8217;d want a longer record, blood tests, and more client testimonials before I&#8217;d consider them.<br />
3) Don&#8217;t know how many to use, how often, and I don&#8217;t see a lot of data on other users yet.  Wish I could afford TSO, &#8217;cause I could just add that.<br />
4) Vit D is 55, so I&#8217;m in a good range.</p>
<p>I think I just need more worms, and magnesium, somehow, and diet, more probiotics&#8230;maybe that will keep me in a better state.</p>
<p>Thanks for the advice!</p>
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	<item>
		<title>By: HS</title>
		<link>http://waitingforthecure.com/I/2010/06/10/the-frustration-of-worm-therapy/comment-page-1/#comment-932</link>
		<dc:creator>HS</dc:creator>
		<pubDate>Fri, 11 Jun 2010 20:29:03 +0000</pubDate>
		<guid isPermaLink="false">http://waitingforthecure.com/I/?p=1027#comment-932</guid>
		<description>Some advice:
1.I am on the gluten-free diet even though I don&#039;t have Celiac and only have Crohn&#039;s. It took 6 weeks on strict gluten-free diet to see a reduction of symptoms. It didn&#039;t cure my Crohn&#039;s but did reduce symptoms significantly. Try and eliminate ALL gluten - it&#039;s not easy but you have nothing to lose.
2. Wormfriends - Australian company seems legit, I saw a few reports that they deliver. Worst comes to worst - you risk $750. I&#039;d say go for it.
3. Get human whipworm ASAP. Hopefully a combination of both will help.
4. Get a blood test for vitamin D. Make sure to supplement until you&#039;re in the range of 5-70ng/ml.</description>
		<content:encoded><![CDATA[<p>Some advice:<br />
1.I am on the gluten-free diet even though I don&#8217;t have Celiac and only have Crohn&#8217;s. It took 6 weeks on strict gluten-free diet to see a reduction of symptoms. It didn&#8217;t cure my Crohn&#8217;s but did reduce symptoms significantly. Try and eliminate ALL gluten &#8211; it&#8217;s not easy but you have nothing to lose.<br />
2. Wormfriends &#8211; Australian company seems legit, I saw a few reports that they deliver. Worst comes to worst &#8211; you risk $750. I&#8217;d say go for it.<br />
3. Get human whipworm ASAP. Hopefully a combination of both will help.<br />
4. Get a blood test for vitamin D. Make sure to supplement until you&#8217;re in the range of 5-70ng/ml.</p>
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		<title>By: Greg</title>
		<link>http://waitingforthecure.com/I/2010/06/10/the-frustration-of-worm-therapy/comment-page-1/#comment-928</link>
		<dc:creator>Greg</dc:creator>
		<pubDate>Fri, 11 Jun 2010 07:38:46 +0000</pubDate>
		<guid isPermaLink="false">http://waitingforthecure.com/I/?p=1027#comment-928</guid>
		<description>I say, go gluten-free and keep working at growing your own Hookworms. It seems difficult, but not impossible. Keep trying.</description>
		<content:encoded><![CDATA[<p>I say, go gluten-free and keep working at growing your own Hookworms. It seems difficult, but not impossible. Keep trying.</p>
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