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	<title>Comments on: TSO: Wish I had never tried</title>
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	<link>http://waitingforthecure.com/I/2010/10/10/tso-wish-i-had-never-tried/</link>
	<description>... a day in the life of Crohn's disease ...</description>
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		<title>By: admin</title>
		<link>http://waitingforthecure.com/I/2010/10/10/tso-wish-i-had-never-tried/comment-page-1/#comment-1042</link>
		<dc:creator>admin</dc:creator>
		<pubDate>Tue, 19 Oct 2010 05:28:29 +0000</pubDate>
		<guid isPermaLink="false">http://waitingforthecure.com/I/?p=1082#comment-1042</guid>
		<description><![CDATA[www.wormtherapy.com has them on their website now.

http://opensourcehelminththerapy.org/mediawiki2/index.php?title=DIY

people are learning incubation techniques and soon wish to share, but it&#039;s illegal in the US currently to incubate and share.

There&#039;s always South America...]]></description>
		<content:encoded><![CDATA[<p><a href="http://www.wormtherapy.com" rel="nofollow">http://www.wormtherapy.com</a> has them on their website now.</p>
<p><a href="http://opensourcehelminththerapy.org/mediawiki2/index.php?title=DIY" rel="nofollow">http://opensourcehelminththerapy.org/mediawiki2/index.php?title=DIY</a></p>
<p>people are learning incubation techniques and soon wish to share, but it&#8217;s illegal in the US currently to incubate and share.</p>
<p>There&#8217;s always South America&#8230;</p>
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		<title>By: AJ</title>
		<link>http://waitingforthecure.com/I/2010/10/10/tso-wish-i-had-never-tried/comment-page-1/#comment-1039</link>
		<dc:creator>AJ</dc:creator>
		<pubDate>Mon, 18 Oct 2010 23:05:34 +0000</pubDate>
		<guid isPermaLink="false">http://waitingforthecure.com/I/?p=1082#comment-1039</guid>
		<description><![CDATA[Where will you get TT from now that you turned down Jasper&#039;s offer?]]></description>
		<content:encoded><![CDATA[<p>Where will you get TT from now that you turned down Jasper&#8217;s offer?</p>
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		<title>By: admin</title>
		<link>http://waitingforthecure.com/I/2010/10/10/tso-wish-i-had-never-tried/comment-page-1/#comment-1037</link>
		<dc:creator>admin</dc:creator>
		<pubDate>Mon, 18 Oct 2010 18:49:29 +0000</pubDate>
		<guid isPermaLink="false">http://waitingforthecure.com/I/?p=1082#comment-1037</guid>
		<description><![CDATA[My plan is to add more hookworms soon, while tapering prednisone.  I just did an egg count, and despite this horrendous flare, the resident hookworms are kicking out 500 epg, so perhaps if I up their population, I will return to where I was the last 2 years?  Then, perhaps, if I can reach remission for some months and a place of stability, I may choose to experiment with TT.]]></description>
		<content:encoded><![CDATA[<p>My plan is to add more hookworms soon, while tapering prednisone.  I just did an egg count, and despite this horrendous flare, the resident hookworms are kicking out 500 epg, so perhaps if I up their population, I will return to where I was the last 2 years?  Then, perhaps, if I can reach remission for some months and a place of stability, I may choose to experiment with TT.</p>
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	<item>
		<title>By: admin</title>
		<link>http://waitingforthecure.com/I/2010/10/10/tso-wish-i-had-never-tried/comment-page-1/#comment-1036</link>
		<dc:creator>admin</dc:creator>
		<pubDate>Mon, 18 Oct 2010 18:47:23 +0000</pubDate>
		<guid isPermaLink="false">http://waitingforthecure.com/I/?p=1082#comment-1036</guid>
		<description><![CDATA[I was on Prednisone when I started the TSO, and the first dose was non-eventful.  2 weeks later, I was down to 5 mg. of Pred, and the second TSO dose caused terrible, immediate worsening.  I went up to 7.5 mg. for the week, and got through it, but wasn&#039;t as good as the week before.  I then waited another 2 weeks (3 weeks total between doses) and was off of Prednisone by then.  Had a solid stool the morning I drank the third vial, but I was still having mucus and urgency.  The third dose caused a severe flare-up; violent diarrhea on day 2, severe abdominal pain, and this progressed to 5-10 X liquid D a day.  After one week like this, I had to go back on a high dose of Prednisone, and I am still not right.

Yeah, not worth it for a transient organism like TSO.  I suppose for TT, after you get through the worst side effects, at least hopefully they will mature and start modulating the colonic inflammation.

But I did not expect such a reaction.  I&#039;m told those that tried TSO have worse reactions to TT then those who are whipworm naive, so I guess I&#039;ve just given myself a hard time for the future, if and when I feel brave enough to experiment with trichuris trichuria.]]></description>
		<content:encoded><![CDATA[<p>I was on Prednisone when I started the TSO, and the first dose was non-eventful.  2 weeks later, I was down to 5 mg. of Pred, and the second TSO dose caused terrible, immediate worsening.  I went up to 7.5 mg. for the week, and got through it, but wasn&#8217;t as good as the week before.  I then waited another 2 weeks (3 weeks total between doses) and was off of Prednisone by then.  Had a solid stool the morning I drank the third vial, but I was still having mucus and urgency.  The third dose caused a severe flare-up; violent diarrhea on day 2, severe abdominal pain, and this progressed to 5-10 X liquid D a day.  After one week like this, I had to go back on a high dose of Prednisone, and I am still not right.</p>
<p>Yeah, not worth it for a transient organism like TSO.  I suppose for TT, after you get through the worst side effects, at least hopefully they will mature and start modulating the colonic inflammation.</p>
<p>But I did not expect such a reaction.  I&#8217;m told those that tried TSO have worse reactions to TT then those who are whipworm naive, so I guess I&#8217;ve just given myself a hard time for the future, if and when I feel brave enough to experiment with trichuris trichuria.</p>
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		<title>By: Mike S</title>
		<link>http://waitingforthecure.com/I/2010/10/10/tso-wish-i-had-never-tried/comment-page-1/#comment-1035</link>
		<dc:creator>Mike S</dc:creator>
		<pubDate>Mon, 18 Oct 2010 02:17:28 +0000</pubDate>
		<guid isPermaLink="false">http://waitingforthecure.com/I/?p=1082#comment-1035</guid>
		<description><![CDATA[Did you start prednisone before or after stsrting TSO? 

From my talks with Marc, it sounds like the best thing to do when taking whipworm is to take a decent run of prednisone to blunt any bodily reactions to the inoculation. I took prednisone for two weeks when I dosed with 1,000 TTO. 

Of course, with TSO therapy this doesnt make much sense then, because you&#039;d need to be on pred all the time, since you redose all the time. 

If you ever try TT, probably taking prednisone or something similar would keep from launching you into a flair?

I&#039;m really sorry to hear you&#039;re having such bad times. Good things to come, for sure :)]]></description>
		<content:encoded><![CDATA[<p>Did you start prednisone before or after stsrting TSO? </p>
<p>From my talks with Marc, it sounds like the best thing to do when taking whipworm is to take a decent run of prednisone to blunt any bodily reactions to the inoculation. I took prednisone for two weeks when I dosed with 1,000 TTO. </p>
<p>Of course, with TSO therapy this doesnt make much sense then, because you&#8217;d need to be on pred all the time, since you redose all the time. </p>
<p>If you ever try TT, probably taking prednisone or something similar would keep from launching you into a flair?</p>
<p>I&#8217;m really sorry to hear you&#8217;re having such bad times. Good things to come, for sure <img src='http://waitingforthecure.com/I/wp-includes/images/smilies/icon_smile.gif' alt=':)' class='wp-smiley' /> </p>
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		<title>By: HS</title>
		<link>http://waitingforthecure.com/I/2010/10/10/tso-wish-i-had-never-tried/comment-page-1/#comment-1011</link>
		<dc:creator>HS</dc:creator>
		<pubDate>Mon, 11 Oct 2010 18:48:32 +0000</pubDate>
		<guid isPermaLink="false">http://waitingforthecure.com/I/?p=1082#comment-1011</guid>
		<description><![CDATA[Why not try a large dose - let&#039;s say 35 hookworms - while on 40mg-60mg of prednisone? That should both suppress the inflammatory response to the hookworms and at the same time give hookworms a chance to calm your immune system. What&#039;s the risk here of doing that? The benefits are clear.]]></description>
		<content:encoded><![CDATA[<p>Why not try a large dose &#8211; let&#8217;s say 35 hookworms &#8211; while on 40mg-60mg of prednisone? That should both suppress the inflammatory response to the hookworms and at the same time give hookworms a chance to calm your immune system. What&#8217;s the risk here of doing that? The benefits are clear.</p>
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