Comments on: Making Lemonade

By: Nikki Dugas

Nikki Dugas — Sat, 28 May 2011 22:19:30 +0000

Your song is beautiful. I listened to it three times it moved me so much. Thank you for sharing it and your story. My thoughts are with you in, Nikki

By: Linda Hagar

Linda Hagar — Fri, 13 May 2011 16:18:32 +0000

I’m wondering if your worsening Crohn’s at this age could be related to hormonal changes? (Also because ALL of my health problems are related to hormones.) When I find my hormone book, I’m going to lend it to you.

I hope you start getting better!!!!!!!!!!

By: admin

admin — Fri, 13 May 2011 15:04:31 +0000

Yeah, I was set to enter their trial, just had the final exam to do. Then Osiris suddenly changed their requirements saying you could only have failed ONE biologic. (I tried two.) The thing that REALLY sucks is I had to let myself get worse to qualify; you needed a cRP greater than 5, and a CDAI between 250-350. I would have just done a drug like Solara or Tysabri after I cleared the last infection and CRP was back to 0, then put more worms in. Instead, in two weeks, I developed these abscesses, and here I am. Damn Osiris! And you can’t lie to get in, since they just check your medical records.

By: AJ

AJ — Fri, 13 May 2011 07:26:42 +0000

Sorry to hear about your recent troubles. If it comes down to a colectomy, I would seriously consider the stem cell transplant.

Any news on using Prochymal?