Saturday, October 16, 2010
1 AM It hurts. I almost make it to the toilet. The stars are out, the nightlight glows softly. My husband snores from the livingroom. I bend over as the gas moves from ascending colon to the undiseased part, then back down again through inflammation, a bleeding rectum, finally painful diarrhea. I try to focus [...]
Friday, February 26, 2010
Can I just gripe about the little things? I think with Crohn’s disease, we should get a stipend. Point of fact: 1)Soft toilet paper is expensive! And when you go to the bathroom 5X as much as the average person, you have to use that many more rolls. This is unfair. The economy toilet paper [...]
Thursday, December 3, 2009
I always get from people, after explaining that I am using hookworms to control my Crohn’s disease, that I am very, very brave. I usually reply that it was scarier going to the oncology department of my local hospital and being hooked up to my first infusion of Remicade. Especially after almost dying from neutropenia [...]
So, what is a day in the life of Crohn’s disease? It depends on how inflamed I am. The day begins at 12 AM, when I wake up from a dream and feel the sudden urge to have a bowel movement. I pull back the covers, try to disentangle myself from my cat, black out [...]
I went to church today. The sermon was on suffering. At one point, the priest turned and gestured to Jesus hanging from the cross, the ultimate in human suffering, he implied. Well. I’m sure it must have been challenging, being the son of God and all, but I don’t think hanging from the cross depicts [...]