Can I just gripe about the little things? I think with Crohn’s disease, we should get a stipend. Point of fact:
1)Soft toilet paper is expensive! And when you go to the bathroom 5X as much as the average person, you have to use that many more rolls. This is unfair. [...]
I always get from people, after explaining that I am using hookworms to control my Crohn’s disease, that I am very, very brave. I usually reply that it was scarier going to the oncology department of my local hospital and being hooked up to my first infusion of Remicade. Especially after almost dying from [...]
So, what is a day in the life of Crohn’s disease? It depends on how inflamed I am.
The day begins at 12 AM, when I wake up from a dream and feel the sudden urge to have a bowel movement. I pull back the covers, try to disentangle myself from my cat, black [...]
I went to church today. The sermon was on suffering. At one point, the priest turned and gestured to Jesus hanging from the cross, the ultimate in human suffering, he implied. Well.
I’m sure it must have been challenging, being the son of God and all, but I don’t think hanging from the cross depicts [...]
What if this doesn’t work for me? I’m writing about it, hoping for it, suffering. Alone. The only thing left is study medication, and I’ll probably have a horrible reaction, if I don’t get the placebo. And then…what’s left? To die?
I’m mad at everyone. They promised, in the 80’s, that [...]