Comments for Waiting for the Cure http://waitingforthecure.com/I ... a day in the life of Crohn's disease ... Mon, 23 Jan 2012 17:10:23 +0000 hourly 1 http://wordpress.org/?v=3.3 Comment on IVig Worked! by admin http://waitingforthecure.com/I/2011/12/19/ivig-worked/comment-page-1/#comment-1594 admin Mon, 23 Jan 2012 17:10:23 +0000 http://waitingforthecure.com/I/?p=1415#comment-1594 I'm doing OK. The pyoderma is gone. The Crohn's is starting to hurt in my ilium and I'm getting some random anal and vaginal pains that I may have to check out. I'm in the side effect period of the new hookworms, so hoping it's just that, since my joints are aching occasionally in my fingers. Weight is good, appetite good. I need to get a blood test to check for inflammation. My veins are worn out from the IVig though and they hurt. I’m doing OK. The pyoderma is gone. The Crohn’s is starting to hurt in my ilium and I’m getting some random anal and vaginal pains that I may have to check out. I’m in the side effect period of the new hookworms, so hoping it’s just that, since my joints are aching occasionally in my fingers. Weight is good, appetite good. I need to get a blood test to check for inflammation.

My veins are worn out from the IVig though and they hurt.

]]> Comment on IVig Worked! by Jerry http://waitingforthecure.com/I/2011/12/19/ivig-worked/comment-page-1/#comment-1592 Jerry Mon, 23 Jan 2012 04:03:15 +0000 http://waitingforthecure.com/I/?p=1415#comment-1592 how are you doing? how are you doing?

]]> Comment on This Blog by Jerry http://waitingforthecure.com/I/2010/05/12/this-blog/comment-page-1/#comment-1591 Jerry Sun, 22 Jan 2012 22:14:36 +0000 http://waitingforthecure.com/I/?p=999#comment-1591 Your website has been very honest. I am still willing to do this for my chronic fatigue, fibromyalgia, allergies and all my other autoimmune stuff. I just know I have to be ready and not plan a big event or trip when I try these.It gives me a worst case scenario which is always helpful. Since there are other positive stories, it is good to have variety . Keep writing! Thank you! Your website has been very honest. I am still willing to do this for my chronic fatigue, fibromyalgia, allergies and all my other autoimmune stuff. I just know I have to be ready and not plan a big event or trip when I try these.It gives me a worst case scenario which is always helpful. Since there are other positive stories, it is good to have variety . Keep writing! Thank you!

]]> Comment on The Potential Dangers of Helminth Therapy by admin http://waitingforthecure.com/I/2009/08/31/the-potential-dangers-of-helminth-therapy/comment-page-1/#comment-1584 admin Fri, 02 Dec 2011 15:49:09 +0000 http://waitingforthecure.com/I/?p=736#comment-1584 Garin from www.wormtherapy.com is who I recommend. Unfortunately you have to go to either Tijuana or Cancun to get the worms if you live in the US; he can ship anywhere else. The other "dealer" is AIT but I do not recommend them because they haven't done adequate blood tests on their donors. Garin is very methodical and far more knowledgeable about the immune system. I was a patient of AIT first and was doing well on low dose hookworms every 6 months, but Jasper fled the US, then got mad at this article, and denied me service. Garin has been wonderful. There is also the pig whipworm, or TSO which they are doing trials on currently in the US, so you can purchase them through ovamed.com, but they are very expensive and must be taken every 2 weeks. Depending on where you live, U. Of Nottingham will be conducting a 1 year MS trial with hookworms. Good luck! Garin from http://www.wormtherapy.com is who I recommend. Unfortunately you have to go to either Tijuana or Cancun to get the worms if you live in the US; he can ship anywhere else. The other “dealer” is AIT but I do not recommend them because they haven’t done adequate blood tests on their donors. Garin is very methodical and far more knowledgeable about the immune system. I was a patient of AIT first and was doing well on low dose hookworms every 6 months, but Jasper fled the US, then got mad at this article, and denied me service. Garin has been wonderful. There is also the pig whipworm, or TSO which they are doing trials on currently in the US, so you can purchase them through ovamed.com, but they are very expensive and must be taken every 2 weeks. Depending on where you live, U. Of Nottingham will be conducting a 1 year MS trial with hookworms. Good luck!

]]> Comment on The Potential Dangers of Helminth Therapy by Maria http://waitingforthecure.com/I/2009/08/31/the-potential-dangers-of-helminth-therapy/comment-page-1/#comment-1583 Maria Fri, 02 Dec 2011 06:07:15 +0000 http://waitingforthecure.com/I/?p=736#comment-1583 I recently heard about this treatment through MS Lifelines (?) I would like to know a reputable "dealer" etc. My neurologist told me today he wouldn't be involved with it, but I would do almost anything to reduce the progression of my disease. Thank you for this article any ideas? I recently heard about this treatment through MS Lifelines (?) I would like to know a reputable “dealer” etc. My neurologist told me today he wouldn’t be involved with it, but I would do almost anything to reduce the progression of my disease. Thank you for this article any ideas?

]]> Comment on Fecal Transfusion and other Joys by Laraine Stegemann http://waitingforthecure.com/I/2011/04/19/fecal-transfusion-and-other-joys/comment-page-1/#comment-1582 Laraine Stegemann Fri, 25 Nov 2011 17:01:51 +0000 http://waitingforthecure.com/I/?p=1375#comment-1582 Hey there! I’ve just stopped by to thank you for this great blog! Keep going that way. Hey there! I’ve just stopped by to thank you for this great blog! Keep going that way.

]]> Comment on Pyoderma, IVig by joe http://waitingforthecure.com/I/2011/10/24/pyoderma-ivig/comment-page-1/#comment-1576 joe Sat, 05 Nov 2011 18:42:23 +0000 http://waitingforthecure.com/I/?p=1410#comment-1576 If you have no options left, go for the stem cell transplant. If you have no options left, go for the stem cell transplant.

]]> Comment on Killing the Worms by Maggie http://waitingforthecure.com/I/2011/09/09/killing-the-worms/comment-page-1/#comment-1569 Maggie Sat, 15 Oct 2011 23:30:08 +0000 http://waitingforthecure.com/I/?p=1407#comment-1569 I have always enjoyed your comments on Facebook. Your really a tough lady yet you have truly suffered this last year. Good thoughts your way. I have always enjoyed your comments on Facebook. Your really a tough lady yet you have truly suffered this last year. Good thoughts your way.

]]> Comment on Transdermal Magnesium – Aaaah by Martina http://waitingforthecure.com/I/2010/02/16/transdermal-magnesium-aaaah/comment-page-1/#comment-1567 Martina Wed, 28 Sep 2011 06:26:55 +0000 http://waitingforthecure.com/I/?p=956#comment-1567 I recently purchased some magnesium cream from a compounding pharmacy in Canada. I found out that it contains magnesium choride hexahydrate... possibly also available at pet stores for fish tanks. Epsom salts are magnesium sulfate - not the same which is why the effect doesn't last. This cream does an internal cleanse for 3 days - but now I just feel a deep inner stillness... like after having a soothing, long jacuzzi. I recently purchased some magnesium cream from a compounding pharmacy in Canada. I found out that it contains magnesium choride hexahydrate… possibly also available at pet stores for fish tanks. Epsom salts are magnesium sulfate – not the same which is why the effect doesn’t last. This cream does an internal cleanse for 3 days – but now I just feel a deep inner stillness… like after having a soothing, long jacuzzi.

]]> Comment on To the Medical Community by Maureen http://waitingforthecure.com/I/2009/09/29/to-the-medical-community/comment-page-1/#comment-1555 Maureen Fri, 23 Sep 2011 00:31:46 +0000 http://waitingforthecure.com/I/?p=811#comment-1555 What happened???? What happened????

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