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There are studies that need input from IBD patients in order to better serve the community. One that I was asked to participate in was “CCFA partners”. It is just a web based questionnaire, but these things can have big impacts on how doctors meet their patients needs. especially for a rare disorder like IBD where some family docs and even GI docs will only see 3-4 cases in their lifetime. the website to take the survey and be a part of this research is:

https://cgibd.med.unc.edu/ccfapartners/

The CCFA website also has loads of good information for patients. Good luck with your health and well being.